At the end of May I made a summer bucket list. I was feeling sad about how empty and flat and lonely my life feels as (1) an autistic person who (2) still takes COVID seriously (it is extremely lonely out here) and hoped that making a list of autism-friendly and COVID-safer things to do around town, and then working my way through the list, would help me feel more alive and less lonely and sad.

My list ended up with 18 items on it. I completed (or completed-ish) 13 of them and plan to complete another one tomorrow, so I’m counting it as completed in the list below. Completed items are bolded. Completed-ish items are bolded and italicized.

1. Archery
2. Bouldering
3. Bowling
4. Cinnabon
5. Farmer’s market, flea market, or estate sale
6. Finish an art/craft/creative project
7. Flower arranging class
8. Go for more—and longer—walks
9. Ice cream
10. Local bookstore I haven’t been to yet
11. Mini golf
12. Museum
13. Photo booth
14. Photograph street art
15. Pizza in the park
16. Puzzle
17. Sport/athletic activity I haven’t tried
18. Tropical Smoothie

I also ended up doing/trying a few things that I didn’t know about when I first made the list: I stopped by an outdoor comedy night held at a park near my apartment, and, on a different evening at the same park, an original practice Shakespeare performance of A Midsommer Nights Dreame; I spent a couple hours at the Adult Soapbox Derby, a well-known Portland summer event held each year at a different park near my apartment; I went to the first night of Portland Night Market in July.

Another main idea behind making this list was to not sit and spiral in my apartment all summer. Last summer was incredibly rough for me, in very large part because of (1) a health issue that triggered the most severe and prolonged flare of my most disabling mental illnesses that I’ve ever experienced (it’s been more than a year and I still haven’t recovered to baseline), and (2) the extreme heat, which prolonged and intensified that flare (extreme temps are one of my most reliable triggers for these particular mental illnesses). That whole episode—the health issue, the mental illness flare, the extreme heat—bled into other concurrent situations/experiences, which led to me becoming suicidal and, ultimately, quitting my job. That was my first (and hopefully only) experience with suicidality and I HATED being in that headspace. It was uncomfortable and scary and unsustainable.

I didn’t want a repeat this summer of how I felt last summer, so I made this list of things to do to help me get myself out of my head—and apartment!—when my brain started braining too frequently and/or intensely. In that regard, this list was a success.

I made it a point to think of this list as a menu of options of stuff to do when I had the time/money/spoons rather than a to-do list of items that all had to be checked off. I knew it was more likely than not that I wouldn’t complete the entire list and I didn’t want to feel bad about that or like I failed (or like I was the failure). I also steered clear of adding anything to the list that was primarily or exclusively about productivity (ew) or organizing/volunteering/advocating (things I do a lot of already). I wanted the list to be full of side quests that prioritized social, emotional, and/or intellectual sustenance—things that filled my cup more than they emptied it.

I hoped these little side quests would infuse some fun and joy into my life. Sometimes they did, though not as much or as often as I hoped they would. Honestly, as the summer went on, I became more angry and sad and full of grief about COVID and the parts of my life I’ve lost to it, and about how hard it is to be autistic, especially when everyone around you dismisses you as “high functioning” so you don’t get the help or support you need. By July I felt lonelier than I did at the start of summer a month earlier.

A lot of the stuff I did this summer, I did alone. While I’m used to and often enjoy doing things alone, it can feel really depressing sometimes when doing things alone is your only or primary option. So many of the things on this list would’ve been so much more enjoyable and fun and nourishing with a friend or a small group of friends. How, though? (Rhetorical.) It’s hard enough to make friends as an adult for people who aren’t autistic and/or who don’t still take COVID seriously. It feels impossible as someone who’s both.

As shitty as I felt at times, the summer wasn’t a bust. Making and then tackling this list accomplished the goal of getting me out of my head—and my apartment!—and into the world, which helped mitigate the frequency and intensity of my mental illness flares.

Overall, I’m happy I did this project and I wish I had more—and local!—people in my life to share experiences and make memories with. Thanks to all the walks I went on this summer, I learned about a few still-COVIDing spaces and events in the city that I didn’t previously know about, which makes the idea of finding those people feel a little less impossible. We’ll see where fall takes me.

* * *

It would’ve made much more sense to post this list at the start of summer and then drop in with little updates here and there throughout the summer, I KNOW. Oh well. My plan is to share more details about some of the activities on the list that I completed (or completed-ish) in the coming weeks. And yes, I’m already working on a similar list ahead of the colder months so I can avoid as much temperature-induced spiraling year-round as I can.